Rare Disease Day 2025 spotlights children's health
There are over 7,000 rare diseases worldwide, with more being discovered every year. One in 12 Canadians has a rare disease, with children representing two-thirds of those cases. Unfortunately, the lack of treatment options means that 75 percent of children with a rare disease will not live to see their tenth birthday.
In the video below, Daislyn Vidal, Research Coordinator with the Department of Pediatrics and Clinical Trial Navigator with RareKids-CAN, explains how rare diseases are affecting Canadian children and why research is key to improving health outcomes.