SASKATOON – The University of Saskatchewan’s (USask) Respiratory Research Centre (RRC) launched an inaugural event to connect researchers and clinicians with patients and families affected by respiratory diseases.
The RRC event, “Advances in Respiratory Research: What Patients and Families Need to Know,” was held on May 10 with an aim to engage patients and families in a unique opportunity to learn about current best practices and research innovations in respiratory health, share their own journeys and have the opportunity to interact directly with clinicians and researchers.
“This event provided an opportunity for patients and families to share their expertise and experiences in partnership with clinicians and researchers. Including the patient voice helped event participants to learn what it is like to live with a respiratory disease and how research can improve their quality of life,” said Candace Skrapek, a Patient Family Advisory Council Member with the RRC.
“Events like this help to cultivate shared values by incorporating the experience of patients as experts in living with their condition with the experience of researchers in respiratory research that can drive truly meaningful innovation in health care and improved patient outcomes.”
Two patients shared their experiences with asthma and lung cancer with the audience. Leading researchers from the university with expertise in such areas as lung cancer, lung transplantation, asthma and COPD shared the most current evidence on diagnosis and treatment with the audience and participated in a question-and-answer session with patients and families.
“There is tremendous value in an event like this. Participants will see new research in the field, hear from individuals who have already experienced these problems, and be informed on the best practice for their own journeys,” said Josh Websdale, Patient Advisor and fourth-year kinesiology student at USask.
In 2017, the College of Medicine and the Lung Association of Saskatchewan launched the Respiratory Research Centre. As part of the mission, the RRC was established to build knowledge and understanding of respiratory health and well-being across the life span and within at-risk groups, using patient/person, family, population-health, and “One Health” focused approaches.
“More than one in four Canadians are likely to be diagnosed with a respiratory illness at some point in their lives. The research conducted by faculty members of the RRC addresses our mission of discovery for healthy breathing. Research conducted by RRC member spans a wide spectrum from basic and translational research to health systems improvement and patient-oriented projects to,” said RRC Executive Director, Dr. Donna Goodridge.
The RRC will build on the successes of this event to drive future planning involving patient and community engagement.
More information is available at: https://medicine.usask.ca/respiratoryresearch/index.php